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CAD501 - Health and Social Care in Dementia 1

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CAD501 - Health and Social Care in Dementia 1

Offered By: Wicking Dementia Research & Education Centre

Lecturer: Helga Merle

Unit Code: CAD501

Unit Info

Key

	PDF		Utas Catalogue		Other
	DOC		Web Link

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Aged Care Quality and Safety Commission (ACQSC), 2019, 'Single set of quality standards – the Aged Care Quality Standards', .

Aged Care Sector Committee, 2017, 'Aged care roadmap', .

Aged Care Sector Committee Diversity Sub-group (ACSCDS), 2019, 'Actions to support older Culturally and Linguistically Diverse people: A guide for aged care providers', .

Alexopoulos, G., Abrams, R., Young, R., & Shamoian, C, 1988, 'Cornell Scale For Depression in Dementia', Biological Psychiatry, 23, 3, 271–284

Alzheimer's Disease International (ADI), 2015, 'World Alzheimer Report 2015 : The Global Impact of Dementia. An analysis of prevalence, incidence, cost and trends provides a snap shot of global dementia statistics', .

Alzheimer's Disease International (ADI), 2016, 'Dementia friendly communities: Key principles and Dementia friendly communities. Global developments', .

Alzheimer's Disease International (ADI), 2018, 'Dementia Friendly Communities: Global Developments. 2nd Edition', .

Alzheimer’s Disease International, 2015, 'World Alzheimer report 2015 : the global impact of dementia : an analysis of prevalence, incidence, cost and trends', .

Alzheimer’s Disease International (ADI) ; Barbarino, P. et al., 2019, 'From Plan to Impact II : The urgent need for action [ebook]', .

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Ashby-Mitchel, K ; Burns, R ; Shaw, J ; Anstey, K J, 2017, 'Proportion of dementia in Australia explained by common modifiable risk factors', Alzheimer's research & therapy, 9, 11

Australian Commission on Safety and Quality in Health Care, 2018, 'Review of key attributes of high-performing person-centred healthcare organisations [ebook]', .

Australian Government. Dept. of Health, 2015, 'National framework for action on dementia 2015 - 2019 [ebook]', .

Australian Human Rights Commission (AHRC), 2012, 'Human rights approach to ageing and health: Respect and choice – 2012', .

Australian Institute of Health and Welfare (AIHW), 2019, 'Dementia Overview', .

Backhouse, A., Ukoumunne, O., Richards, D., McCabe, R., Watkins, R., Dickens, C, 2018, 'The effectiveness of community-based coordinating interventions in dementia care: a meta-analysis and subgroup analysis of intervention components', BMC health services research, 17, 1, 717

Bailey, C., Clarke, C., Gibb, C., Haining, S., Wilkinson, H., Tiplady, S, 2013, 'Risky and resilient life with dementia: Review of and reflections on the literature', Health, risk & society, 15, 5, 390-401

Banovic, S., Zunic, L. J., & Sinanovic, O, 2018, 'Communication Difficulties as a Result of Dementia', Materia socio-medica , 30, 3, 221–224

Barbosa, A. et al., 2015, 'Effects of person-centered care approaches to dementia care on staff: a systematic review', American journal of Alzheimer's disease and other dementias, 30, 8, 713-722

Barrett, P., Sharma, M., & Zeisel, Z, 2019, 'Optimal spaces for those living with dementia: principles and evidence', Building research and information , 47, 6, 734-746

Beard, J., Officer, A., DeCarvalho, I., Sadana, R., Pot, A., Michel, J., Loyd-Sherlock, P., Epping-Jordan, J., Peeters, G., Mahanani, W., Thiyagarajan, J., Chatterji, S, 2016, 'The World report on ageing and health: a policy framework for healthy ageing', The lancet , 387, 10033, 2145-2154

Berenbaum, R., Tziraki, C., Mazuz, K., 2017, 'The enduring self: personhood, autonomy and compassion in the context of community-based dementia daycare', Journal of compassionate health care, 4, 8, 1-10

Beresford, P, 2019, 'Public Participation in Health and Social Care: Exploring the Co-production of Knowledge', Frontiers in sociology, 3, 41

Bergenholtz, H., Jarlbaek, L., Hølge-Hazelton, B, 2015, 'The culture of general palliative nursing care in medical departments: an ethnographic study', International journal of palliative nursing, 21, 4, 193-201

Bewick, T, 2016, 'Nurses can make a difference: caring for those living with dementia', Australian journal of dementia care, December 6

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Bosco, A., Schneider, J., Coleston-Shields, D., Higgs, P., Orrell, M, 2019, 'The social construction of dementia: Systematic review and metacognitive model of enculturation', Maturitas, 120, 12-22

Brannelly, T, 2011, 'Sustaining citizenship: People with dementia and the phenomenon of social death', Nursing ethics, 18, 5, 662–671

Brinkman-Stoppelenburg, A., Rietjens, J., & van der Heide, A, 2014, 'The effects of advance care planning on end-of-life care: A systematic review', Palliative medicine, 28, 8, 1000–1025

Brittain, K., Degnen, C., Gibson, G., Dickinson, C., Robinson, L, 2017, 'When walking becomes wandering: representing the fear of the fourth age', Sociology of health and illness, 39, 2, 270-284

Brodaty, H., Seeher, K., Gibson, L, 2012, 'Dementia time to death: a systematic literature review on survival time and years of life lost in people with dementia', International psychogeriatrics, 24, 7, 1034-1045

Brooker, D ; Rosvik, J et al., 2013, 'What is person-centred care in dementia? Clinical reviews into practice: the development of the VIPS practice model', Reviews in clinical gerontology, 23, 2, 155-163

Brownie, S., Nancarrow, S., 2013, 'Effects of person-centered care on residents and staff in aged-care facilities: a systematic review', Clinical interventions in aging, 8, 1-10

Butchard, S., & Kinderman, P, 2019, 'Human rights, dementia, and identity', European psychologist, 24, 2, 159-168

Carpenter, J., McDarby, M., Smith, D., Johnson, M., Thorpe, J., Ersek, M, 2017, 'Associations between Timing of Palliative Care Consults and Family Evaluation of Care for Veterans Who Die in a Hospice/Palliative Care Unit', Journal of palliative medicine, 20, 7, 745-751

Central Coast Council, 2017, 'Dementia friendly Central Coast framework [ebook]', .

Chung, P. Y. F., Ellis-Hill, C., Coleman, P., 2017, 'Supporting activity engagement by family carers at home: maintenance of agency and personhood in dementia', International journal of qualitative studies on health and well-being, 12, 1, 1-14

Close, J., Taylor, M., & Kurrle, S, 2019, 'Understanding risk and preventing falls and functional decline in older people with cognitive impairment CDPC Activity 19: Final Report', .

Cohen-Mansfield, J et al., 2015, 'Which unmet needs contribute to behavior problems in persons with advanced dementia? ', Psychiatry research, 228, 1, 59-64

CommunityWest. (2016). Co-producing Aged Care Services with a Wellness Focus. Part One: A Guide. Step Forward Together Toolkit and Resource Guide: Toolkit Part One: A Guide. CommunityWest Inc.

Cravello, L., Di Santo, S., Varrassi, G. et al, 2019, 'Chronic Pain in the Elderly with Cognitive Decline: A Narrative Review', Pain and therapy, 8, 1, 53-65

Crawford, G., Price, S, 2003, 'Team working: palliative care as a model of interdisciplinary practice', Medical journal of Australia, 179, S6, S32-S34

Cummings, J., Mega, M., Gray, K., Rosenberg-Thompson, S., Carusi, D., & Gornbein, J, 1994, 'The Neuropsychiatric Inventory: comprehensive assessment of psychopathology in dementia', Neurology , 44, 12, 2308–2314

Davis, D, 2004, 'Dementia: sociological and philosophical constructions', Social science & medicine, 58, 2, 369-378

Dawson, A., Bowes, A., Kelly, F., Velzke, K., & Ward, R, 2015, 'Evidence of what works to support and sustain care at home for people with dementia: a literature review with a systematic approach', BMC geriatrics, 15, 1

Day, J. et al., 2018, 'Experiences of older people following the introduction of consumer‐directed care to home care packages : a qualitative descriptive study', Australasian journal on ageing, 37, 4, 275-282

Dementia Alliance International (DAI). (2019). Dementia: the leading cause of disability. Side Event Handout. Conference Of State Parties (CoSP) on the Convention On the Rights of Persons with Disabilities (CRPD) at the United Nations in New York on June 13, 2019.

Dementia Australia, 2019, 'Our Solution : Quality Care for people living with dementia', .

Dementia Australia, 2018, 'Designing a new future : Dementia Australia's strategic direction 2018-2023', .

Dementia Australia, 2018, 'Dementia language guidelines', .

Deponte, A., & Missan, R, 2007, 'Effectiveness of validation therapy (VT) in group: preliminary results', Archives of gerontology and geriatrics, 44, 113-137

Detering, K., Hancock, A., Reade, M., and Silvester, W, 2010, 'The impact of advance care planning on end of life care in elderly patients: randomised controlled trial', BMJ : British medical journal , 340, 1345

Dewar, B., MacBride, T, 2017, 'Developing Caring Conversations in care homes: an appreciative inquiry', Health & social care in the community, 25, 4, 1375-1386

Dewar, B., Mackay, R., Smith, S., Pullin, P., & Tocher, R, 2010, 'Use of emotional touchpoints as a method of tapping into the experience of receiving compassionate care in a hospital setting', Journal of research in nursing , 15, 1, 29-41

Dewar, B., Nolan, M., 2013, 'Caring about caring : developing a model to implement compassionate relationship centred care in an older people care setting', International journal of nursing studies, 50, 9, 1247-1258

Dewar, B., Sharp, C., Barrie, K., MacBride, T. and Meyer, J, 2017, 'Caring Conversation Framework to promote person centred care: synthesising qualitative findings from a multi- phase programme of research', International journal of person centered medicine, 7, 1, 31-45

Doyle, P., Rubinstein, R, 2014, 'Person-Centered Dementia Care and the Cultural Matrix of Othering', The gerontologist, 54, 6, 952-963

Dröes, R.M et al., 2017, 'Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice', Aging & Mental Health, 21, 1, 4-17

Duane, F. M., Goeman, D. P., Beanland, C. J., & Koch, S. H, 2015, 'The role of a clinical nurse consultant dementia specialist: A qualitative evaluation', Dementia, 14, 4, 436–449

Dubois, B., Padovan, A., Scheltens, P., Rossi, A. & Dell'Agnello, G, 2016, 'Timely diagnosis for Alzheimer's disease: A literature review on the benefits and challenges', Journal of Alzheimer’s Disease, 49, 3, 617-631

Duffy, F, 2017, 'A Social Work Perspective on How Ageist Language, Discourses and Understandings Negatively Frame Older People and Why Taking a Critical Social Work Stance Is Essential', British Journal of Social Work, 47, 7, 2068-2085

Dupuis, S. L., Smale, B., Gillies, J., McAiney, C., & Nolan, M, 2012, 'Adapting the CARE profiles to the Canadian dementia care context : Poster presented at the 27th International Conference of Alzheimer’s Disease International', .

Dyer, S., Gnanamanickam, E., Liu., C Whitehead, C., & Crotty, M, 2018, 'Diagnosis of dementia in residential aged care settings in Australia: An opportunity for improvements in quality of care?', Australasian Journal on Ageing, 37, 4, E155-E158

Edelman, P., Fulton, B., Kuhn, D., Chang, C, 2005, 'A Comparison of Three Methods of Measuring Dementia-Specific Quality of Life: Perspectives of Residents, Staff, and Observers', The gerontologist, 45, Suppl. 1, 27-36

Egan, C. (2019). Aged Care Residents Are “Very Lonely”, Royal Commission Hears. Hello Care.

Eichler, T., Thyrian, J. R., Fredrich, D., Kohler, L et al., 2014, 'The benefits of implementing a computerized intervention-management-system (IMS) on delivering integrated dementia care in the primary care setting', International psychogeriatrics, 26, 8, 1377-1385

Faulkner, M., Davies, S., Nolan, M.R., & Brown-Wilson, C, 2006, 'Development of the combined assessment or residential environments (CARE) profiles', Journal of advanced nursing, 55, 6, 664-677

Fazio, S. et al., 2018, 'The fundamentals of person-centered care for individuals with dementia', Gerontologist, 58, S1, S10-S19

Fazio, S., Pace, D., Maslow, K., Zimmerman, S. & Kallmyer, B. , 2018, 'Alzheimer’s Association dementia care practice recommendations', The gerontologist, 58, S1, s1-S9

Fels, D., & Astell, A, 2011, 'Storytelling as a Model of Conversation for People with Dementia and Caregivers', American journal of Alzheimer's disease and other dementias, 26, 7

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Fryer, S., Bellamy, G., Morgan, T., Gott, M, 2016, 'Sometimes I’ve gone home feeling that my voice hasn’t been heard”: a focus group study exploring the views and experiences of health care assistants when caring for dying residents', BMC palliative care , 15, 78

Gao, L., Calloway, R., Zhao, E., Brayne, C., Matthews, F, 2018, 'Accuracy of death certification of dementia in population-based samples of older people: analysis over time', Age and Aging, 47, 4, 589-594

GBD, 2019, 'Global, regional, and national burden of Alzheimer's disease and other dementias, 1990–2016: a systematic analysis for the Global Burden of Disease Study 2016', The Lancet Neurology, 18, 1, 88–106

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