Reading List

CAD203 - Principles of Palliation in Dementia Care

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CAD203 - Principles of Palliation in Dementia Care

Offered By: Wicking Dementia Research and Education Centre

Lecturer: Prof Fran McInerney

Unit Code: CAD203

Key
PDF Utas Catalogue Other
DOC Web Link

https://alz-journals.onlinelibrary.wiley.com/doi/full/10.1002/alz.12068 Alzheimer’s Association, 2020, 'Alzheimer’s disease facts and figures', Alzheimer's & dementia, 16, 3, 391-460

http://search.ebscohost.com/login.aspx?direct=true&db=mdc&AN=25873700&site=ehost-live Arcand, M. , 2015, 'End-of-life issues in advanced dementia. Part 1: goals of care, decision-making process, and family education', Canadian family physician, 61, 4, 330-334

http://search.ebscohost.com/login.aspx?direct=true&db=mdc&AN=25873701&site=ehost-live Arcand, M. , 2015, 'End-of-life issues in advanced dementia. Part 2: management of poor nutritional intake, dehydration, and pneumonia', Canadian family physician, 61, 4, 337-341

https://journals-sagepub-com.ezproxy.utas.edu.au/doi/full/10.1177/0193945916658881 Arruda, E., Paun, O., 2017, 'Dementia caregiver grief and bereavement: An integrative review', Western Journal of Nursing Research, 39, 6, 825-851

https://onlinelibrary-wiley-com.ezproxy.utas.edu.au/doi/10.1002/gps.5078 Bullock, L., Bedson, J., Jordan, J. et al, 2019, 'Pain assessment and pain treatment for community‐dwelling people with dementia: A systematic review and narrative synthesis', International journal of geriatric psychiatry, 34, 6, 807-821

https://www.dementia.org.au/files/documents/Dementia-Australia-Numbered-Publication-43.pdf Dementia Australia, 2018, 'Palliative Care and Dementia', ., Paper No. 43

https://link-springer-com.ezproxy.utas.edu.au/article/10.1007/s11136-019-02333-3 Griffiths, A., Smith, S., Martin, A. et al, 2020, 'Exploring self report and proxy report quality of life measures for people living with dementia in care homes', Quality of life research, 29, 463-472

https://journals.sagepub.com/doi/abs/10.1177/1533317518765124 Hill, E., Savundranayagam, M., Zecevic, A., Kloseck, M., 2018, 'Staff perspectives of barriers to access and delivery of palliative care for persons with dementia in long-term care, ', American Journal of Alzheimer’s Disease & Other Dementias, 33, 5, 284-291

https://academic-oup-com.ezproxy.utas.edu.au/gerontologist/article/57/6/1093/2631944?searchresult=1 Hovland-Scafe, C., Kramer, B., 2017, 'Preparedness for Death: How Caregivers of Elders With Dementia Define and Perceive its Value', Gerontologist, 57, 6, 1093-1102

http://search.ebscohost.com.ezproxy.utas.edu.au/login.aspx?direct=true&db=ccm&AN=135083498&site=ehost-live Koo, V., Jin, S., Wan, B., Ahrari, S., Lam, H., Rowbottom, L., Chow, S., Chow, R., Chow, E., DeAngelis, C, 208, 'Pain management in older adults with dementia: A selective review', Journal of pain management , 11, 4, 333-344

https://journals-sagepub-com.ezproxy.utas.edu.au/doi/full/10.1177/0308022619879080 Kristensen, H., Peoples, H., 2020, 'Experiences related to quality of life in people with dementia living in institutional settings: A meta-aggregation', British journal of occupational therapy , 83, 3, 145-161

https://www-sciencedirect-com.ezproxy.utas.edu.au/science/article/pii/S0378512215300669 Kydd, A., Sharp, B., 2016, 'Palliative care and dementia – A time and place? ', Maturitas, 84, 5-10

https://journals-sagepub-com.ezproxy.utas.edu.au/doi/full/10.1177/0030222816652802 MacCourt, P., McLennan, M., Somers, S., Krawczyk, M., 2017, 'Effectiveness of a grief intervention for caregivers of people with dementia', Omega: Journal of Death and Dying, 75, 3, 230-247

http://search.ebscohost.com.ezproxy.utas.edu.au/login.aspx?direct=true&db=sxi&AN=123060334&site=ehost-live Meier, D., Bowman, B., 2017, 'The Changing Landscape of Palliative Care', Generations, 41, 1, 74-80

http://www.nejm.org.ezproxy.utas.edu.au/doi/full/10.1056/NEJMoa0902234 Mitchell, S. ; Teno, J. ; Kiely, D. ; Shaffer, M. ; Jones, R. ; Prigerson, H. ; Hamel, M., 2009, 'The Clinical Course of Advanced Dementia', New England Journal of Medicine, 361, 1529-1538

https://www-tandfonline-com.ezproxy.utas.edu.au/doi/full/10.1179/1743291X12Y.0000000031 O'Connor, M., Tan, H., O'Connor, D., Workman, B., 2013, 'Is the frequent death of residents in aged care facilities a significant cause of grief for residents with mild dementia? ', Progress in Palliative Care, 21, 1, 7-12

https://www-cambridge-org.ezproxy.utas.edu.au/core/journals/international-psychogeriatrics/article/healthrelated-qualityoflife-instruments-for-alzheimers-disease-and-mixed-dementia/54368BB3BD03CAF9CBB6F8BF74701D61 Perales, J. ; Cosco, T. D. ; Stephan, B. C. M. ; Haro, J. M. ; Brayne, C., 2013, 'Health-related quality-of-life instruments for Alzheimer's disease and mixed dementia', International Psychogeriatrics, 25, 5, 691-706

https://sykepleien.no/en/forskning/2020/03/characteristics-nursing-home-residents-late-stage-dementia-and-pain Rostad, H. et al., 2020, 'Characteristics of nursing home residents with late-stage dementia and pain', Norwegian journal of clinical nursing, 1-17

https://journals-sagepub-com.ezproxy.utas.edu.au/doi/full/10.1177/1471301218762838 Sanford, S., Rapoport, M., 2019, 'Independence, loss, and social identity: Perspectives on driving cessation and dementia', Dementia, 18, 7-8, 2906-2924

http://www.sciencedirect.com.ezproxy.utas.edu.au/science/article/pii/S1322769613000838?np=y Stirling, C. et al., 2014, 'A tool to aid talking about dementia and dying : development and evaluation', Collegian, 21, 4, 337–343

https://link.gale.com/apps/doc/A341131598/AONE?u=utas1&sid=AONE&xid=2893be18 Strand, J., Kamdar, M., Carey, E., 2013, 'Top 10 things palliative care clinicians wished everyone knew about palliative care', Mayo Clinic Proceedings, 88, 8, 859-865

http://search.ebscohost.com.ezproxy.utas.edu.au/login.aspx?direct=true&db=mdc&AN=30450680&site=ehost-live Strand, L., Gundrosen, K., Lein, R. et al, 2019, 'Body movements as pain indicators in older people with cognitive impairment: A systematic review', European journal of pain, 23, 4, 669-685

https://journals-sagepub-com.ezproxy.utas.edu.au/doi/full/10.1177/1471301214529783 Tranvag, O., Petersen, K., Naden, D., 2016, 'Crucial dimensions constituting dignity experience in persons living with dementia', Dementia, 15, 4, 578-595

http://www.sciencedirect.com.ezproxy.utas.edu.au/science/article/pii/S0020748912004567?np=y Van Gennip, I. E., Pasman, H. R. W. et al, 2013, 'The development of a model of dignity in illness based on qualitative interviews with seriously ill patients', International journal of nursing studies, 50, 8, 1080-1089

https://academic-oup-com.ezproxy.utas.edu.au/psychsocgerontology/article/71/3/491/2605098?searchresult=1 van Gennip, I., Pasman, H. et al, 2013, 'How dementia affects personal dignity: A qualitative study on the perspective of individuals with mild to moderate dementia', Journals of gerontology. Series B, Psychological sciences and social sciences, 71, 3, 491-501

https://www-tandfonline-com.ezproxy.utas.edu.au/doi/full/10.1179/1743291X12Y.0000000036 Volicer, L., 2013, 'Palliative care in dementia', Progress in palliative care, 21, 3, 146-150